by Fraser Henderson | Nov 22, 2024 | Involvement
The National Institute for Health and Care Research is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into Asthma by participating in...
by Fraser Henderson | Nov 20, 2024 | Involvement
The Royal National Institute of Blind People (RNIB) want to hear your experiences of getting around, personal safety, employment, family, and relations. To help RNIB improve the support available to blind and partially sighted people across the UK and to focus on what...
by Fraser Henderson | Nov 20, 2024 | Involvement
The National Institute for Health and Care Research is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into children with migraine, by...
by Fraser Henderson | Nov 20, 2024 | Involvement
The National Institute for Health and Care Research is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into Post-Traumatic Headache in...
by Fraser Henderson | Nov 20, 2024 | Involvement
The National Institute for Health and Care Research is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into Haemophilia in Children, by...
by Fraser Henderson | Nov 16, 2024 | Frontpage
On face value the Post Office is embracing a stronger culture of consultation and engagement. There is the promise of stronger postmaster engagement in the running of the business after the Horizon scandal and a new postmaster panel will be established to enable...
by Fraser Henderson | Nov 8, 2024 | Involvement
Sarcoma UK is a is a national charity that funds vital research and offers information and support to anyone affected by sarcoma. They have their own Involvement Network made up of over 150 members. They’ve been making changes to their webpage which is a way...
by Fraser Henderson | Oct 25, 2024 | Frontpage
The recent launch of change.nhs.uk promises to be ‘the biggest ever conversation about the future of the NHS’. But don’t be fooled – big conversations are not entirely new, in-fact “thebigconversation.org” conducted an 18-month consultation...
by Fraser Henderson | Oct 5, 2024 | Frontpage
Visibility is so important in a noisy world. And there is nothing worse than people coming forward at the end of a consultation claiming they knew nothing about it. Worse still, few public bodies who consult on a regular basis have any cash resources for boosting...
by Fraser Henderson | Sep 11, 2024 | Frontpage
Tenant voice has been in the spotlight recently with the new report from the public enquiry being published. Whilst the bar has been raised on standards since then, top-down consultation is still lacking when it comes to pooling tacit knowledge and conversing with...
by Fraser Henderson | Jul 17, 2024 | Frontpage
One thing is for sure, if you’re about to embark on a system reset and develop a citizen centric culture then everybody needs to be in. While a policy refresh might help, the underpinnings of any approach should be to develop the appropriate values in the people that...
by Fraser Henderson | Jun 21, 2024 | Involvement
Could you help Mind to deliver training and create resources to ensure their work meets the needs of marginalised communities?* They are looking for 2 people from a diverse range of communities to help influence and deliver their work, and to ensure their work meets...
by Fraser Henderson | Jun 21, 2024 | Involvement
It is sometimes challenging to get a timely GP appointment for common health conditions like a sore throat and a urinary tract infection (UTI). In response, the Government has widened the range of medicines people can receive from pharmacists without seeing their...
by Fraser Henderson | Jun 21, 2024 | Involvement
A researcher at University of Bath has worked with two lived experience facilitators to form a Parental Insights Group. The Group will be set up and led by the facilitators (with experience of co-production and public involvement) to help design a research project and...
by Fraser Henderson | Jun 21, 2024 | Involvement
This is a lived experience-led interview research project, designed by a PhD student at King’s College London. They hope to interview people, including from diverse backgrounds and with marginalised social identities, who are living with personality disorder diagnoses...
by Fraser Henderson | Jun 21, 2024 | Involvement
The National Institute for Health and Care Research is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into lung cancer, by...
by Fraser Henderson | Jun 21, 2024 | Involvement
Dr Fiona Duncan is a Research Associate at Newcastle University. Her research interests focus on how delivering services and interventions in community spaces can be used as a way of promoting good mental health and preventing mental illness in the whole community. ...
by Fraser Henderson | Jun 21, 2024 | Involvement
People with psychosis and related disorders (schizophrenia, schizoaffective or bipolar disorder) experience more physical illnesses compared to those who do not have mental illness. As a result, mental health services are increasingly offering service users regular...
by Fraser Henderson | Jun 21, 2024 | Involvement
They are a master’s student at University College London, conducting a piece of research as part of their final dissertation project. This is a qualitative study, investigating the experiences of young adults during mental health assessments in mental health services...
by Fraser Henderson | Jun 20, 2024 | Frontpage
The election approach is a good time to reimagine opportunities for enhanced participatory democracy under a new (or existing!) government. History tells us that most party manifestos are nothing more than aspirations, not necessarily well conceived and not...
by Fraser Henderson | Jun 10, 2024 | Involvement
Researchers at the University of East London are looking for participants for their survey regarding social media and mental health amongst Further Education students in Northwest England. Survey responses will contribute to understanding the advantages and potential...
by Fraser Henderson | Jun 10, 2024 | Involvement
This is a scoping project funded by the Care Policy and Evaluation Centre at the London School of Economics and Political Science. They are trying to gain initial information about social media for social care including an understanding of how people use social media...
by Fraser Henderson | Jun 6, 2024 | Involvement
The National Institute for Health and Care Research is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into testicular cancer, by...
by Fraser Henderson | Jun 6, 2024 | Involvement
Cathy Beresford is a nurse and PhD student at Bournemouth University working with people affected by advanced liver disease to explore their experiences of care. Carers of individuals with advanced liver disease can also take part in the study. To take part in...
by Fraser Henderson | Jun 6, 2024 | Involvement
The National Institute for Health and Care Research is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into thalassaemia, by...
by Fraser Henderson | May 31, 2024 | Involvement
Lyla Adwan-Kamara is doing a study on wellbeing and burnout among disability activists. This study is funded by London School of Economics as part of ‘Atlantic Fellows for Social and Economic Equity’. Lyla used to run a Disabled People’s Organisation and...
by Fraser Henderson | May 31, 2024 | Involvement
Pulmonary fibrosis is a type of lung scarring, where the lungs become stiffer and smaller, eventually leading to lower oxygen levels in the blood. This can be caused by a range of other conditions, including asbestosis, rheumatoid arthritis, and scleroderma. However,...
by Fraser Henderson | May 14, 2024 | Frontpage
We’ve been busy looking at every local authority website across the UK to try and determine how public consultations are presented. The results vary from very organised to virtually nonexistent – with just over half of local authorities just listing...
by Fraser Henderson | May 11, 2024 | Frontpage
This article was kindly written for ACEP by Andy Mills (a seasoned consultation and engagement professional) The robustness of plans needed after a consultation has concluded is easily underestimated. It’s quite the tragedy if an otherwise robust dialogue phase is...
by Fraser Henderson | May 8, 2024 | Involvement
The National Institute for Health and Care Research is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into non-small cell lung cancer,...
by Fraser Henderson | Apr 10, 2024 | Involvement
The Health Research Authority (HRA) promotes and protects the interests of patients and the public in health and social research, with the overall goal of making it easier to do research that people can trust. The CAG is an advisory committee managed by the HRA, which...
by Fraser Henderson | Apr 9, 2024 | Involvement
MQ, a leading global mental health research charity, is working with universities across the UK (University of Oxford, King’s College London, University of Cambridge, University of Manchester, Durham University) to design a new clinical trial platform for psychosis to...
by Fraser Henderson | Apr 8, 2024 | Involvement
The National Institute for Health and Care Research (NIHR) is pleased to share an opportunity to be involved in shaping a commercial research study in triple negative breast cancer. The NIHR wants to hear your experiences of living with, or supporting others with,...
by Fraser Henderson | Apr 8, 2024 | Involvement
The National Institute for Health and Care Research (NIHR) is pleased to share an opportunity to be involved in shaping a commercial research study in small cell lung cancer. The NIHR wants to hear your experiences of living with, or supporting others with, this...
by Fraser Henderson | Apr 4, 2024 | Frontpage
With over £100bm of new linear infrastructure projects planned between now and 2030, consultation and engagement professionals who work in the planning sector are going to be busy. And it’s not just the benefits of the required changes that are at stake…without...
by Fraser Henderson | Apr 3, 2024 | Involvement
This research project aims to gain an understanding of the experiences of nonbinary people who have engaged with mental health services in England. Unfortunately, nonbinary voices have largely been left out of mental health research thus far. This project aims to...
by Fraser Henderson | Apr 1, 2024 | Involvement
Join a group of people affected by cancer to ensure the work we do reflects the needs of cancer patients and their loved ones. Cancer Research UK are looking for people affected by cancer to join their Patient Involvement panel. Our panel members share their...
by Fraser Henderson | Mar 25, 2024 | Involvement
The National Institute for Health and Care Research are looking for members of the public to join their committees. As a public committee member you will need to have a broad interest in and knowledge of health, social care and/or actions to improve public health and...
by Fraser Henderson | Mar 11, 2024 | Involvement
This project is looking for people to be part of the patient and public involvement and engagement (PPIE) group to refine and shape the design, analysis, and sharing of results. The project examines conversations between healthcare professionals and patients with...
by Fraser Henderson | Mar 6, 2024 | Involvement
My name is Ed Kiely (they/them) and I am a postdoctoral researcher at Queen Mary University of London. I am leading a research project that is trying to understand how sectioning creates social inequalities, and the ways it harms survivors. (Sectioning means being...
by Fraser Henderson | Feb 19, 2024 | Involvement
The aim of this project is to understand the experience and impact of telling staff about, or disclosing, childhood trauma in community mental health teams (CMHTs) and to develop ways for community mental health care co-ordinators to improve this process. Background:...
by Fraser Henderson | Feb 13, 2024 | Involvement
Trainee Clinical Psychologist at the University of Liverpool hoping to understand your experiences of therapy and how your ethnic identity impacted this through a short remote interview. The findings of their research will inform public health services by providing a...
by Fraser Henderson | Feb 13, 2024 | Involvement
The Childhood Experiences and Psychosis Online Study is looking for people to take part in their online research study. The research project is being led by Nadia Akers, a Trainee Clinical Psychologist at the University of Manchester, as part of her doctoral training...
by Fraser Henderson | Feb 13, 2024 | Involvement
The research aims to explore the experiences that people with chronic energy-limiting health conditions have had in counselling or psychotherapy. It will shine a light on people’s stories and their path through therapy as well as how their therapist worked with them....
by Fraser Henderson | Feb 12, 2024 | Involvement
Researchers from Kings College London are looking to involve people with lived experience to join a Patient and Public Involvement and Engagement (PPIE) group to steer the design and delivery of their new research study. The study is looking to better understand what...
by Fraser Henderson | Feb 7, 2024 | Involvement
Summary: We are recruiting an Advisory Group of about 6 people who will meet regularly to help oversee the London Alliance for the Co-production of Evidence Synthesis (LACES) project. This Advisory Group will reflect different sets of expertise and perspectives from...
by Fraser Henderson | Feb 7, 2024 | Involvement
Summary: What is the project about? We are looking at how we can improve the different parts of and approaches to the methods that we use to combine and make sense of evidence* for different stakeholders (e.g., formal systematic reviews or systematic maps). Such...
by Fraser Henderson | Feb 7, 2024 | Involvement
This project is focussed on diabetic eye screening, including screening for diabetic retinopathy. It is the most frequent complication of diabetes and the leading cause of visual loss and blindness if left untreated. National screening programmes have had a large...
by Fraser Henderson | Feb 6, 2024 | Frontpage
Engaging older people is often overlooked in the attempt to rectify pitiful levels of engagement among young people. Given that they have the most lived experience, this really doesn’t make sense – particularly as staying socially engaged is known to improve health...
by Fraser Henderson | Jan 29, 2024 | Involvement
Pulmonary fibrosis is a type of lung scarring, where the lungs become stiffer and smaller, eventually leading to lower oxygen levels in the blood. This can be caused by a range of other conditions, including asbestosis, rheumatoid arthritis, and scleroderma. However,...
by Fraser Henderson | Jan 23, 2024 | Involvement
This project is being led by Dr Hannah Harvey at Birmingham City University and supported by a team of parents of children with developmental language disorder (DLD). They are trying to understand how it feels to be told that your child has DLD and what is important...
by Fraser Henderson | Jan 22, 2024 | Involvement
The Innovation, Research, Life Sciences & Strategy (IRLSS) group at NHS England are expanding their Strategic Co-production group (SCG) and recruiting Patient and Public Voice Partners to join the group. Full information for this role can be found here and an...
by Fraser Henderson | Jan 22, 2024 | Involvement
Sarah West, a postgraduate researcher at Coventry University, is running a series of workshops with survivors who have been supported by people in their personal networks, such as their friends, partners or family members (informal support), and people who have...
by Fraser Henderson | Jan 19, 2024 | Frontpage
In the modern attention economy, consultation and engagement professionals have never had to work so hard to attract an audience. ‘Statistically insignificant” is an easy challenge that tends to focus on raw numbers instead of sound representation....
by Fraser Henderson | Jan 15, 2024 | Involvement
Beth and Molly are two doctoral researchers at Royal Holloway University of London. They are inviting you to take part in a study exploring the relationship between childhood trauma and voice-related distress in adults that hear voices. If you decide to take part,...
by Fraser Henderson | Jan 15, 2024 | Involvement
A Trainee Clinical Psychologist, Melanie Taylor, is carrying out a doctorate research study via Lancaster University. This study is investigating how experiencing childhood trauma may influence one’s understanding of themselves in adulthood. Childhood trauma is more...
by Fraser Henderson | Jan 10, 2024 | Involvement
Help Cancer Research UK to review funding applications for their Research Centres of Excellence in brain, lung, and radiation research and ensure they’re involving people affected by cancer appropriately and effectively. They are looking for: Are or have been...
by Fraser Henderson | Jan 10, 2024 | Involvement
This is a new breast cancer research study funded by Cancer Research UK and led by researchers at Oxford University. The study aims to answer important questions about ethnicity and breast cancer. The study will investigate: Why women of African, Caribbean, Indian...
by Fraser Henderson | Jan 10, 2024 | Involvement
The National Institute for Health and Care Research is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into renal cell carcinoma, by...
by Fraser Henderson | Jan 10, 2024 | Involvement
Are you self-employed or run your own micro business (with fewer than 10 employees)? Do you have personal experience of mental health problems? Are you a person of colour? If yes, Mind would like to hear from you! Running your own business is never easy and...
by Fraser Henderson | Jan 9, 2024 | Involvement
The National Institute for Health and Care Research is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into children undergoing...
by Fraser Henderson | Jan 8, 2024 | Involvement
Join the RNIB for an online group discussion to talk about how sight loss has impacted your social relationships. This is an opportunity to discuss your experiences with family and friends, romantic relationships, peers, and your local community. If your social...
by Fraser Henderson | Jan 8, 2024 | Involvement
People First (Self Advocacy) and BILD are working with Transport for London (TFL) to find out what people with learning difficulties, disabilities and autistic people think about travelling in London and how their experiences of using transport can be improved. They...
by Fraser Henderson | Jan 4, 2024 | Frontpage
As more and more public bodies declare bankruptcy there are difficult decisions ahead about budget cuts and how they translate into service continuity. Getting finances “back on track” is one such theme of this timely budget discussion in Birmingham . Despite being...
by Fraser Henderson | Dec 18, 2023 | Involvement
The Friendship Bench is an evidence-based problem-solving therapy intervention that is delivered by non-specialist workers (i.e., “local grandmothers”) in the community for people experiencing symptoms of depression and anxiety (You can learn more about the Friendship...
by Fraser Henderson | Dec 14, 2023 | Frontpage
The PropTech fund has spawned a series of experiments around planning, technology and public consultation that are well worth following. It’s great to see DLUCH investing in pilots and local government. Many of these experiments have focused on using AI in...
by Fraser Henderson | Dec 12, 2023 | Involvement
This is a study run by a first year PhD student, who is also a nurse and lived experience researcher, with a history of self-harm and mental health service use. This research study is exploring self-harm from a lived experience perspective. This research is aiming...
by Fraser Henderson | Dec 6, 2023 | Involvement
The Oldham Lived Experience Forum is a group of people with mental health lived experience that want to actively contribute to the quality of support, prevention and recovery services across Oldham in the Living Well partnership and make them more inclusive, diverse...
by Fraser Henderson | Nov 28, 2023 | Involvement
NHS England are testing new ways to access medication for the management of obesity. It will support adults living with obesity outside of traditional specialist weight management services, which are accessed via hospitals. The medicines will likely be prescribed...
by Fraser Henderson | Nov 23, 2023 | Frontpage
To get devolution deals over the line there is a significant amount of effort involved in ratifying them. The first problem is that a “minded-to” deal is effectively a done deal, with very limited scope for maneuver and a big cash incentive for them to complete. ...
by Fraser Henderson | Nov 22, 2023 | Involvement
The National Institute for Health and Care Research is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) in Chronic Lymphocytic Leukaemia...
by Fraser Henderson | Nov 22, 2023 | Involvement
Katrine Callander, an autistic PhD researcher in Social Policy at University of Kent, is conducting research exploring the complexities of trauma and identity among late-diagnosed autistic women. She has lived experience of the research focus area. This research is...
by Fraser Henderson | Nov 20, 2023 | Involvement
Rethink Mental Illness are looking for individuals to join their Lived Experience Advisory Board (LEAB). They are looking for: They are looking for people who have lived experience of mental ill health, are passionate about supporting mental health and want to make a...
by Fraser Henderson | Nov 8, 2023 | Involvement
The Applied Research Collaboration Kent, Surrey and Sussex (ARC KSS) are looking for members of the public to join the ARC KSS as Theme Public Advisors. They currently have 5 vacancies relating to the following areas of research: Social Care Public Health Economics of...
by Fraser Henderson | Nov 1, 2023 | Involvement
The CONNECT Study aims to understand the impact of remote consultations in contraception and sexual health services on health inequalities. The study is organised and sponsored by the University of Birmingham and they are setting up a Study Voices Panel and seeking...
by Fraser Henderson | Oct 31, 2023 | Involvement
The Loneliness and Social Isolation in Mental Health research network (LSIMHN) brings together many different perspectives on the topic of loneliness in relation to mental health. It is funded by the National Institute for Health Research (NIHR) University College...
by Fraser Henderson | Oct 31, 2023 | Involvement
A research team from the University of Manchester are currently running a study which aims to develop a measure of recovery in older adults with bipolar disorder. They worked with people who have experience of bipolar to create the measure. Now it is developed, they...
by Fraser Henderson | Oct 30, 2023 | Frontpage
We’re pleased to announce the publication of our first discussion paper! To coincide, we’re also launching the “think for yourself” campaign. Please let us know what you think in the comments below. Share on Facebook Share on Twitter...
by Fraser Henderson | Oct 16, 2023 | Involvement
Are you interested in research, early detection and prevention? Do you want to help make a difference and represent the voice of people from underrepresented groups? Cancer Research UK are looking for people to join their panel. You’ll help make sure our decisions...
by Fraser Henderson | Oct 16, 2023 | Involvement
Cancer Research UK are looking for people to help review and discuss requests from commercial organisations to re-use data from Cancer Research UK funded studies. By being part of this panel, you’ll help ensure that the research we support will use data responsibly,...
by Fraser Henderson | Oct 16, 2023 | Involvement
A Trainee Clinical Psychologist, Alison Byrne, at the University of East London is carrying out a doctoral research project. She is hoping to speak to relatives and carers of people who experience ‘psychosis’, about their views on restrictive practices on inpatient...
by Fraser Henderson | Oct 9, 2023 | Involvement
Abigail Moses, a Disabled PhD student from Durham University, is doing a research study on what skills disabled people have. Abigail developed skills from being a walking stick user and encountering problems like inaccessible buildings, lack of support at work, and...
by Fraser Henderson | Oct 9, 2023 | Involvement
Mind, the mental health charity, are creating some videos and are looking for people with living experience of personality disorders to help shape the content. They want it to be helpful, and speak to people from all backgrounds. There are two ways to get involved:...
by Fraser Henderson | Oct 9, 2023 | Involvement
The project is being led by Researcher Toby Connell, who is also a qualified Social Worker working at Norfolk County Council. The research project is funded by the NIHR (National Institute for Health Research), and Toby is leading a research team comprising of four...
by Fraser Henderson | Oct 9, 2023 | Involvement
A researcher from University College London is looking to interview people about their experience claiming Personal Independence Payment in the last 5 years. The research aims to look at the experience of people with non-visible or non-apparent impairments claiming...
by Fraser Henderson | Oct 2, 2023 | Frontpage
On the recent charm offensive for drivers, government said that it would consult on extending fines for repairs which run into weekends and increasing levels of fixed penalty notices. However, the most interesting announcement was a £1.1bn endowment-style fund for a...
by Fraser Henderson | Oct 2, 2023 | Involvement
A researcher at the University of Central Lancashire wants to hear your personal experiences of hypnosis use in breast cancer care. The project: a professional doctorate research study to carefully, and sensitively learn about the use of hypnosis in breast cancer...
by Fraser Henderson | Sep 27, 2023 | Involvement
Cancer Research UK is developing a new programme aimed at using different types of data to understand who is most at risk of developing cancer and improve how we prevent, detect, and diagnose cancer early. During the next year, Professor Antonis Antoniou from the...
by Fraser Henderson | Sep 27, 2023 | Involvement
SOCRATES is a group of researchers and experts by experience from three universities (the London School of Economics and Political Science, the University of Central Lancashire and King’s College London). They would like you to join the SOCRATES Network if you care...
by Fraser Henderson | Sep 27, 2023 | Involvement
Have you ever joined a local mental health support group? Or have you used an online support space – like a mental health forum, network or message board? Mind are particularly keen to hear from people from marginalised communities and global majority. Expected...
by Fraser Henderson | Sep 22, 2023 | Frontpage
After the Grenfell Tower disaster in 2019, government started looking at social housing provider reform. Four years’ later and it has finally introduced the 2023 Social Housing (Regulation) Act , which amended the 2008 Housing and Regeneration Act to...
by Fraser Henderson | Sep 13, 2023 | Involvement
Cancer Research UK is looking for 6 people to join a new panel and support the work of the Centre for Drug Development. By working with them, you could help develop tomorrow’s cancer treatment and help them make sure everything they do is patient centred. They are...
by Fraser Henderson | Sep 13, 2023 | Involvement
Join a group of parents, carers, and young people to provide your views and experiences to help shape the direction of Cancer Research UK’s work and ensure it represents the needs of all children and young people affected by cancer. They are looking for: Parents,...
by Fraser Henderson | Sep 13, 2023 | Involvement
Understanding what matters for people living with severe mental illness – a 24h approach to physical activity, sedentary behaviour and sleep. Evidence has shown that people living with severe mental illness are sedentary, struggle to engage in physical activities, and...
by Fraser Henderson | Sep 1, 2023 | Frontpage
There has been much controversy of Asylum accommodation of recent – from the expense of hotel rooms to the safety of “floating hostels”. Alternative plans are also underway to use some of our derelict RAF bases, notably RAF Scampton in Lincolnshire. Up to 2,000...
by Fraser Henderson | Aug 31, 2023 | Involvement
The Three Guineas Trust’s Legal Aid Programme aims to create better access to free legal advice and representation for disabled people on benefits, debt, housing, homelessness, community care, personal liberty, and equal access to goods and services. The Trust wants...
by Fraser Henderson | Aug 29, 2023 | Involvement
Have you taken part in evaluation activities? Do you have thoughts on how to make these activities fairer and more inclusive? The Equitable Evaluation Collective is forming a working group to co-create a plan for making evaluation in the UK fairer and more inclusive....
by Fraser Henderson | Aug 24, 2023 | Involvement
The Successful Treatment of Paranoia (STOP) study is the development of a smartphone app with activities designed to treat psychosis, specifically paranoia. The app can be downloaded to a smartphone or tablet and involves taking part in an activity of reading some...
by Fraser Henderson | Aug 23, 2023 | Involvement
Three practising social workers, whom all work for local authorities in the West Midlands, are currently working part time for West Midlands Association of Directors of Adult Social Services (WMADASS) on a research study. The study aims to try and understand the use...
by Fraser Henderson | Aug 22, 2023 | Frontpage
“…appreciate you coming round here, man. To be honest, I wouldn’t ‘a filled this in here otherwise. I mean, why should I give up my time for this? I hope all this does something though. Respect to you for coming out ‘ere [laughter].” This quote is probably the best...
by Fraser Henderson | Aug 16, 2023 | Involvement
NHS England want to interview patients, families of patients, and carers of all ages and backgrounds, who use all kinds of NHS services, to help them understand more about how people choose to give feedback on their experiences of healthcare to help the NHS learn and...
by Fraser Henderson | Aug 10, 2023 | Frontpage
Seasoned consultation & engagement professionals will be familiar with Arnstein’s Ladder – one of the most widely referenced and influential models in the field of democratic public participation that stretches right back to 1969. Needless to say it’s had some...
by Fraser Henderson | Aug 9, 2023 | Involvement
Community Cafe event – Monday 9th of October 2023, from 11am-2pm The Hub at Victoria Park, hosted by University College London Would you like to chat about ethnic minority groups taking part in mental health research? They are looking for: Black and South Asian...
by Fraser Henderson | Aug 8, 2023 | Involvement
Dr Nicola White and Dr Sarah Yardley are researchers at University College London. Research evidence shows that it is often people who are less financially well-off, live a long way from a hospice, are part of a minority ethnic group, or identify as being from another...
by Fraser Henderson | Aug 2, 2023 | Involvement
The Lived Experience Leadership team at Mind supports staff nationally and locally to involve people with lived experience of mental health problems in programs of work and their respective organisations. The local Mind network provides local services for people with...
by Fraser Henderson | Aug 2, 2023 | Involvement
A team of researchers are working with the McPin Foundation on a brand new research proposal about the relationship between HIV and depression. People living with HIV are at much greater risk of depression. HIV leads to inflammation, and depressive symptoms have been...
by Fraser Henderson | Aug 2, 2023 | Involvement
The University of Nottingham provides teaching for the social work degree and master’s degree. They are looking for people with lived experience of social work who are interested in how this experience can directly influence and benefit the learning of students...
by Fraser Henderson | Aug 2, 2023 | Involvement
Mind is wanting to continue to change how the newsletter looks. They want more diverse content, and more ways to get involved, so readers are getting more of what they want. To do this, Mind are looking for 2 guest editors to form an editing team for 6 months, from...
by Fraser Henderson | Aug 2, 2023 | Involvement
Healthwatch Surrey are seeking new volunteer Advisory Group members. Are you passionate about ensuring that local health and social care provision is exceptional? This voluntary role will help to ensure that Healthwatch Surrey hear as many voices as possible in...
by Fraser Henderson | Jul 20, 2023 | Involvement
The PEGASUS Research programme aims to co-design a peer supported well-being programme to enable those of us with long-term mental health problems (such as Bipolar and Schizophrenia) who take anti-psychotic medications and so are at higher risk of struggling with our...
by Fraser Henderson | Jul 13, 2023 | Frontpage
We should start with the caveat that this is a rare scenario – more often than not, citizens are demanding more consultation or engagement and government is generally trying to become more participatory. However, there are some basic ‘rules of thumb’. Firstly,...
by Fraser Henderson | Jul 12, 2023 | Involvement
Mind is the nation’s leading mental health charity. Their helplines, online information and peer support services offer crucial advice for anybody experiencing a mental health problem. Working harder with and for people living in poverty is one of Mind’s current...
by Fraser Henderson | Jul 5, 2023 | Involvement
The National Institute for Health and Care Excellence (NICE) is looking for people with experience of having an endoscopy which may include colon capsule endoscopy and understanding of the issues important to patients and unpaid carers. As a lay member, you will have...
by Fraser Henderson | Jul 4, 2023 | Involvement
Criminalising Distress is an independent national study exploring the origins, impacts, accountability for, and alternatives to SIM (Serenity Integrated Mentoring) and similar programmes with different names based on the same model. It is being conducted by Medact, a...
by Fraser Henderson | Jun 29, 2023 | Involvement
Have you got a wound that has taken longer than 4 weeks to heal? Or have you had a long term wound in the last six months? Nurse researchers from Kings College London and John Hopkins University, USA are interested in talking to people living with a wound to...
by Fraser Henderson | Jun 23, 2023 | Frontpage
Digital democracy is getting a hard time. Governments are increasingly suspicious of surveillance and discrimination by algorithm, not to mention growing awareness of foreign cyber interference. A recent EU report paints a dark picture of democratic corrosion –...
by Fraser Henderson | Jun 21, 2023 | Involvement
Shaping Our Lives are working with Anglia Ruskin University social work school to involve people in their teaching and courses. We are looking for people who have experience of social care services, this does not need to be experience of social work services but could...
by Fraser Henderson | Jun 21, 2023 | Involvement
Adult social care services use what is referred to as Assistive Technology, or Technology Enabled Care, to help support older people to remain living independently in their own homes. A University of Hertfordshire research team would like your views regarding one type...
by Fraser Henderson | Jun 14, 2023 | Involvement
Deadline 30th June 2023 This work is being carried out by Revealing Reality and Transport for London to improve London’s transport network for everyone. They hope that by speaking to a range of individuals with a variety of an accessibility needs we can improve...
by Fraser Henderson | Jun 14, 2023 | Frontpage
Setting expectations, doing the research and communicating clearly are critical when it comes to designing and implementing schemes – the old adage of applying ‘good manners and common sense’ holds strong in almost all scenarios. It’s easy to get carried away with...
by Fraser Henderson | May 26, 2023 | Frontpage, Uncategorized
Green engagement is going strong. Citizens assemblies and national dialogues have teased out multiple climate conversations but they always seem to under-deliver. In fairness, there is evidence of positive impact – often because government, nationally and locally,...
by Fraser Henderson | May 23, 2023 | Involvement
The Oxfordshire Domestic Abuse Lived Experience Advisory Group (LEAG) is a group of survivors of domestic abuse in Oxfordshire. They work together to help shape and inform local services and policy and act as the advisory group to the county council. They are looking...
by Fraser Henderson | May 18, 2023 | Involvement
The Innovation Community, a health initiative by Macmillan Cancer Support, brings together a diverse group of people living with or affected by cancer, sharing their experiences, skills and knowledge enabling Macmillan to shape their Innovation services and products....
by Fraser Henderson | May 18, 2023 | Frontpage
When fellow guru Jonathan Bradley sent me a message asking me “what would the ultimate citizen engagement platform look like?”, it got me thinking. Interconnected worlds have interconnected problems. Take global food security, climate change or economic stability as...
by Fraser Henderson | May 9, 2023 | Involvement
How can Local Authority Adult Social Care better support women experiencing coercive control in domestic abusive relationships when they are undertaking safeguarding enquiries? Lucy is working on her PhD proposal. She a senior social worker with experience of working...
by Fraser Henderson | May 5, 2023 | Frontpage
A truly British invention, the humble questionnaire has been the ‘bread and butter’ of collecting feedback since it was invented circa 1800. You could, therefore, be forgiven for considering them old fashioned compared to modern interactive and immersive...
by Fraser Henderson | Apr 27, 2023 | Frontpage
Today saw the launch of the Gambling Act Review White Paper which attracted much attention, partly because it proposed that new measures were subject to further consultation. During the lively debate, one opposition MP said “Today is a momentous occasion that many...
by Fraser Henderson | Apr 27, 2023 | Involvement
HQIP hosts a Service User Network (SUN) for people who are interested in contributing to improving the quality of healthcare services. They welcome people with lived experiences as patients and carers to join their SUN. The SUN was first established in 2009 and has...
by Fraser Henderson | Apr 27, 2023 | Involvement
We heart Big Brother is an exciting new theatre-based project by a team of researchers at the University of Exeter and Edinburgh, and immersive theatre company Four of Swords. This summer, they are workshopping an adaption of George Orwell’s classic novel Nineteen...
by Fraser Henderson | Apr 27, 2023 | Involvement
Feeling Safe is a talking therapy for people who experience paranoia or have strongly held beliefs that people are trying to harm or threaten them. In previous research this approach has been shown to help people to feel safer and be more socially active. You can read...
by Fraser Henderson | Apr 27, 2023 | Involvement
A study about experiences of healthcare-related harm is being carried out by researchers from the London School of Hygiene and Tropical Medicine (LSHTM) and the University of Oxford. The purpose of this study is to better understand the experiences of those who have...
by Fraser Henderson | Apr 27, 2023 | Involvement
In this study by York University, researchers want to understand what matters to people living with dementia or memory problems. They will use what they find to create a new section for a website called Socialcaretalk.org. The website will include hundreds of extracts...
by Fraser Henderson | Apr 27, 2023 | Frontpage
There is a new crisis brewing in the wake of the pandemic and it concerns our modified behaviours. In shaping a more digital future, assumptions around supply and demand are creating inequalities. For example, bank branches are closing ‘en-masse’ as customers have...
by Fraser Henderson | Apr 18, 2023 | Frontpage
We tend to think participation is “the act of taking part in, or sharing in something”. The term is one which implies an active rather than a passive process – so perhaps it should be triggered from the bottom up as well as top-down. Empowering communities to demand...
by Fraser Henderson | Apr 12, 2023 | Involvement
EPUT was formed in 2017 following the merger of North Essex Partnership University NHS Foundation Trust (NEP) and South Essex Partnership University NHS Foundation Trust (SEPT). EPUT provides many community health, mental health and learning disability services across...
by Fraser Henderson | Apr 12, 2023 | Involvement
EPUT was formed in 2017 following the merger of North Essex Partnership University NHS Foundation Trust (NEP) and South Essex Partnership University NHS Foundation Trust (SEPT). EPUT provides many community health, mental health and learning disability services across...
by Fraser Henderson | Apr 11, 2023 | Frontpage
Many people would describe change management as a linear process – a curve of denial, frustration, depression and eventual integration. However, consultation and engagement professionals will know first-hand that change has many more layers. Good change management...
by Fraser Henderson | Apr 6, 2023 | Involvement
Habitus Collective is working with the London Borough of Barnet to understand the experiences of Disabled residents, as well as residents with accessibility or mobility needs, or long-term health conditions, or those who may identify as neurodivergent. They want to...
by Fraser Henderson | Apr 6, 2023 | Involvement
NSUN (the National Survivor User Network) is supporting a research project exploring experiences of how menstrual health needs are met, or not met, for people in psychiatric inpatient settings. The aim of this study is to develop understanding of people’s experiences...
by Fraser Henderson | Apr 5, 2023 | Involvement
Housing is integral to people’s lives. Researchers from the London School of Economics and Political Science (LSE) university are carrying out a study looking at characteristics of mainstream housing and people’s difficulties with activities of daily living, mobility,...
by Fraser Henderson | Mar 27, 2023 | Involvement
The National Co-ordinating Centre for Public Engagement (NCCPE) is currently recruiting for several new roles, as part of their commitment to develop and support more inclusive public engagement. The roles will focus on addressing race equity and equality issues...
by Fraser Henderson | Mar 27, 2023 | Frontpage
The attention economy is the collective human capacity to engage with the many elements in our environments that demand mental focus. The term reflects an acknowledgement that the human capacity for attention is limited and that the content and events vying for that...
by Fraser Henderson | Mar 27, 2023 | Involvement
The National Institute for Health and Care Excellence (NICE) is looking for patients and carers with experience of tumour profiting tests for breast cancer to join an advisory committee. The committee will asses tumour profiling tests to guide chemotherapy decisions...
by Fraser Henderson | Mar 27, 2023 | Involvement
The Supporting Parent Carers in England (SPaCE) study, is looking to understand Parent Carers of children with Special Educational Needs and Disabilities (SEND) experiences of accessing support or treatment for their mental health. The aim of this survey is to find...
by Fraser Henderson | Mar 16, 2023 | Involvement
This is a fifteen minute online questionnaire about your body image, body dissatisfaction, and eating and exercising behaviours and how gender might influence these. Researchers at the University of York are looking for participants who identify as trans, non-binary,...
by Fraser Henderson | Mar 15, 2023 | Involvement
The National Institute for Health and Care Excellence are looking for someone to join their interventional procedures committee. As a lay member, you will have this experience and understanding: through personal experience you have of treatment and care provided for...
by Fraser Henderson | Mar 15, 2023 | Involvement
Researchers at the University of Manchester have started recruiting for a study, which aims to explore lesbian and gay adults’ experiences of completing Dialectical Behavioural Therapy (DBT). Lesbian and gay individuals suffer from high rates of mental health...
by Fraser Henderson | Mar 15, 2023 | Involvement
More and more people are struggling to make ends meet, despite working. Including thousands of us with mental health problems. Mind want to hear people’s experiences so they can tell what must change to better support us. They’re putting out a survey for people...
by Fraser Henderson | Mar 13, 2023 | Frontpage
Building a Net Zero society is going to zap a lot of consultation and engagement energy. That is, if we want to do it justice. Forget the ban on plastic straws, that was easy. Delivering real behavior change, such as a new low emissions zone, is demonstrably...
by Fraser Henderson | Mar 3, 2023 | Frontpage
Most people would agree that there is a difference between consultation and engagement – an idea supported by plenty of official guidance which distinguishes between the two. That said, there has always been an argument that engagement is an integral part of...
by Fraser Henderson | Feb 27, 2023 | Frontpage
A common problem with consultation and engagement exercises is the relay of information or facts. For example, a health service may talk about changing A&E to an urgent/emergency care model but fail to define what A&E did in the first place. Getting this...
by Fraser Henderson | Feb 22, 2023 | Involvement
Researchers at the University of Manchester are looking for people who have lived experience to guide their project looking into secure services access assessments. Online open days If you have undergone an access assessment for secure mental health services before,...
by Fraser Henderson | Feb 22, 2023 | Involvement
King’s College London are looking for people to get involved in their Cancer prevention group. The Cancer Prevention Group’s research focusses on cancer prevention and early detection. Research themes include existing screening approaches, potential early...
by Fraser Henderson | Feb 22, 2023 | Involvement
Register by the end of March. The Royal National Institute of Blind People (RNIB) are holding some discussion groups about rehabilitation services. The groups are for people with one or more eye conditions. Date: From April 2023 Duration: 2 hours 15 minutes Where: ...
by Fraser Henderson | Feb 21, 2023 | Involvement
During COVID-19 lockdowns, many community organisations were unable to provide in-person support for their members and used technology to remain connected to the people they care for. Many organisations used digital tools like websites, video calls, and social media,...
by Fraser Henderson | Feb 18, 2023 | Frontpage
Edit : Turns out that you’ll get the most out of ChatGPT if you learn how prompting works. ++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ You might have heard a lot about AI recently and how it is set to disrupt a number of industries. For...
by Fraser Henderson | Feb 15, 2023 | Involvement
Help boost the use of disability/disability-related survey questions in research! Researchers are inviting Disabled people to help review disability survey questions and match them to a disability model, a group of terms that can be used together to help try to...
by Fraser Henderson | Feb 15, 2023 | Involvement
Would you be interested in taking part in a qualitative interview? This would take place over Zoom, last 60-minutes and we would give you £30 as a thank-you If you would like to discuss taking part, please email e.stubbs@lse.ac.uk. We are a team of researchers at the...
by Fraser Henderson | Feb 14, 2023 | Involvement
Shaping Our Lives and the London School of Economics (LSE) are looking for people to take part in online workshops to support the first stage of a research study about the Three Conversations (3Cs) approach to social care. Usually, when you need social care, you’ll...
by Fraser Henderson | Feb 10, 2023 | Frontpage
“Employee led business change” is about enabling the voice of an employee for the benefit of business. We’ve taken a look at the Balfour Beatty scheme called “My Contribution”. My Contribution is about people and engagement, with individuals stepping...
by Fraser Henderson | Feb 8, 2023 | Involvement
The McPin Foundation and the University of Edinburgh are teaming up to find out more about sleep problems and the link to mental health. Many people have experienced sleep problems in their lifetime, including people with mental health issues. These sleep problems can...
by Fraser Henderson | Feb 2, 2023 | Involvement
When people walk into a building, they assume they will be able to open doors, walk upstairs to get to the next level, go to the toilet when needed. Unfortunately, disabled people cannot make these assumptions in many buildings, even modern ones. Buildings that house...
by Fraser Henderson | Feb 2, 2023 | Involvement
The National Institute for Health and Care Research is inviting members of the public to join one of their national and regional committees who are responsible for making funding recommendations in health and social care research. The committees play an important role...
by Fraser Henderson | Jan 30, 2023 | Frontpage
A rather important consultation on draft legislation to support identity verification emerged from government in January this year. You can imagine the headlines – “The beginning of the end for privacy and freedom?”. Probably a good idea to do the...
by Fraser Henderson | Jan 17, 2023 | Frontpage
It’s a common misconception that consultation is a vote but even those “in the know” realise that a popular outcome is the best way to justify a change. Focusing on the numbers is not entirely helpful; questions should instead be raised about representation and the...
by Fraser Henderson | Jan 12, 2023 | Involvement
Vera Kubenz, a PhD student at the University of Birmingham, and a Blue Badge holder herself, is researching Disabled people’s experiences of interactions and encounters with other people when parking in a Blue Badge Bay. The aim of the research is to understand...
by Fraser Henderson | Jan 10, 2023 | Involvement
Researchers at the University of Warwick would like to talk to you! Can you share your experiences of using and accessing general practice? They are looking for: Parents who care for a child or young person aged 21 and below and have Global Developmental Delay...
by Fraser Henderson | Jan 8, 2023 | Frontpage
Many people do not realise but UK Universities have been taking the lead when it comes to public engagement. The most common justification of this engagement work is aligned to a sense of civic responsibility, to respond to societal needs and challenges. For example,...
by Fraser Henderson | Jan 4, 2023 | Involvement
Closing date: Anticipated end of Feb 2023 About the opportunity Sarah West, a postgraduate researcher at Coventry University would like to talk to people who have experience of providing or receiving support to/from people in their personal networks, such as their...
by Fraser Henderson | Dec 21, 2022 | Frontpage
The Citizens’ Panel on Participation has published their report and they have made 17 recommendations to the Citizen Participation and Public Petitions Committee on improving how the Scottish Parliament’s work involves, reflects, and meets the...
by Fraser Henderson | Dec 14, 2022 | Frontpage
The fiasco with P&O Ferries and their lack of employee consultation leading up to mass redundancies is a timely reminder that you can’t skirt the law. However, not all consultations are equal. Employees are entitled to a consultation with their employer if...
by Fraser Henderson | Dec 13, 2022 | Involvement
The study team made up of service users, carers, personal assistants, researchers based at universities and health professionals are looking for people to help with a research project about pressure ulcer prevention. You don’t need to know anything about pressure...
by Fraser Henderson | Dec 7, 2022 | Frontpage
The FCA have recently updated their guidance on “Branch and ATM closures or conversions” (https://www.fca.org.uk/publication/finalised-guidance/fg22-6.pdf) The new guidance includes provisions which recommend engagement with consumers and stakeholders...
by Fraser Henderson | Dec 6, 2022 | Involvement
If you are a researcher with lived experience of psychosis, please consider taking part in this study. It is a qualitative study by the University of Bath investigating a psychosis social identity, or sense of belonging to the group of people who experience psychosis...
by Fraser Henderson | Nov 25, 2022 | Frontpage
We have to start now Sue Hayman is a Shadow Minister on Housing, Communities and Local Government and on Environment, Food and Rural Affairs in the House of Lords. In the summer of 2022 she rightly concluded that there needs to be greater emphasis on a consultation...
by Fraser Henderson | Nov 17, 2022 | Involvement
A team at Birmingham University are looking to speak with women who: are at least 28 weeks pregnant or up to 2 years postpartum AND living with 2 or more long-term health conditions (physical and/or mental health conditions). This is for a study which can help...
by Fraser Henderson | Nov 16, 2022 | Involvement
Are you willing to share your experience of living with an eye condition(s) whether that’s in one or both eyes? The Royal National Institute of Blind People (RNIB) understand there are different levels of vision as well as blindness, so they want to hear from a range...
by Fraser Henderson | Oct 13, 2022 | Involvement
We know that people on a low income, people from ethnic minority communities, those with disabilities, and those with long term health conditions are likely to be the most affected by financial hardship. Healthwatch Milton Keynes are gathering evidence to help the...
by Fraser Henderson | Oct 13, 2022 | Involvement
Sheffield Hallam University are currently looking for volunteers who are: LGBT+ (including but not limited to lesbian, gay, bisexual and/or trans people) Aged 18+ Claiming (or have claimed in the last 8 years) welfare benefits (including child benefit)*, tax credits...
