The National Institute for Health and Care Research is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into testicular cancer, by participating in an online document review. We want to hear your experiences of living with this condition to ensure that this and future research is as accessible as possible for everyone, by designing it for patients, with patients.

What they are looking for:

  • For this opportunity, we are looking for six adult individuals (aged 18 or over), living in the UK, who have lived experience of testicular, extra gonadal germ cell or other urogenital cancers (such as prostate, kidney, bladder or penile cancer), either as a patient or a carer/family member.
  • This activity will be most relevant to people who fall into the above categories, but we would still be happy to hear from you even if you have experience of a being diagnosed and treated for a different solid tumour.
  • You will need to be comfortable with reviewing the documentation and sending back comments online and be willing to discuss your experiences and management of this condition.
  • Prescribing clinicians are not permitted to participate for regulatory reasons. If you are a prescribing clinician and are unsure about your eligibility, please get in touch to discuss this.


Expected commitment from participants:

This is an online document review to comment upon the design of an observational research study and how the information introducing the research is presented to patients. The NIHR want to ensure that the documents are informative, accessible, engaging and fit for purpose, and that the language used is appropriate for potential participants and caregivers. Participants will have 10 days to review the documents and return their feedback.


Documents will be sent via email. The NIHR PECD service will endeavour to make these documents as accessible as possible, depending on participant requirements.


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