The National Institute for Health and Care Research is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into children undergoing dialysis, by participating in an online document review.  We want to hear your experiences of caring for a child living with this condition to ensure that this and future research is as accessible as possible for everyone, by designing it for patients, with patients.

They are looking for:

The NIHR is looking for up 4-6 adult individuals (age over 18), living in the UK, to participate in this opportunity.

They are looking for people who have experience of caring for a child undergoing dialysis, who would be willing to share their experiences and management of this condition. The research is looking specifically at secondary hyperparathyroidism, however parents of children receiving dialysis for other reasons will still be suitable.

This activity will be most relevant to people who fall into all three of the above categories, but they would still be happy to hear from you even if you do not match all of them.

You will need to be comfortable with reviewing the documentation and sending back comments online.

Expected commitment from participants:

This is an online document review to comment upon the design of an observational research study and how the information introducing the research is presented to patients. The NIHR want to ensure that the documents are informative, accessible, engaging and fit for purpose, and that the language used is appropriate for potential participants and caregivers. Participants will have 10 days to review the documents and return their feedback.

Commitment to inclusion:

Documents will be sent via email. The NIHR PECD service will endeavour to make these documents as accessible as possible, depending on participant requirements.

Closing date to apply: 17th January 2024


If you apply for this opportunity please let the organisers know you found it via Shaping Our Lives. Thank you!

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