The National Institute for Health and Care Research is pleased to share an opportunity for members of the public who have lived or caring experience of breast cancer to be involved in the shaping of a commercial trial. They are working with a company to help them improve their planned research. Our partner is looking for people who are willing to read through draft documents that have been prepared for people interested in taking part in the study and giving feedback on how clearly the information has been written and presented. This will help them to design a study that is focused on the needs of the patient, their family, and their community.
Who is the NIHR looking for?
This opportunity is for up to 8 adults (aged 18 or over) who:
- Live in the UK
- Have lived experience, as a patient or carer, of breast cancer
- Can access and use a word processing programme such as Microsoft Word to read the documents and fill out a feedback form
What do participants have to do?
If you are interested in taking part, please complete the application form linked below. If you are selected for the activity, you will be asked to read the draft documents and share your thoughts on how clearly the information is presented. The team want to make sure that the materials are informative, accessible, engaging and fit for purpose, and that the language used is appropriate for potential participants and carers.
The NIHR PECD Team will support you throughout this process and provide any information or guidance you may need.
How long will it take?
The team would expect it to take you up to 2 hours to read the documents and complete the feedback form. You will be given 10 days to complete your review and send back your comments.
Deadline for applications: Wednesday 7th May 2025.
What happens after the review?
The NIHR PECD team will write an anonymised report for the company, summarising the feedback from all the reviewers. The company will use this report to make changes to their study information sheets based on the group’s feedback. A few months after the activity, the PECD team will send an update from the company to all contributors detailing how the insights were used to improve the study information.
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