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Do you or someone you love have lung scarring? Action for Pulmonary Fibrosis (APF) want to hear from you

Do you or someone you love have lung scarring? Action for Pulmonary Fibrosis (APF) want to hear from you

by Fraser Henderson | Jan 29, 2024 | Involvement

Pulmonary fibrosis is a type of lung scarring, where the lungs become stiffer and smaller, eventually leading to lower oxygen levels in the blood. This can be caused by a range of other conditions, including asbestosis, rheumatoid arthritis, and scleroderma. However,...
Do you or someone you love have lung scarring? Action for Pulmonary Fibrosis (APF) want to hear from you

The Parent Perspective: What is the experience of receiving a diagnosis of developmental language disorder (DLD)?

by Fraser Henderson | Jan 23, 2024 | Involvement

This project is being led by Dr Hannah Harvey at Birmingham City University and supported by a team of parents of children with developmental language disorder (DLD).  They are trying to understand how it feels to be told that your child has DLD and what is important...
Do you or someone you love have lung scarring? Action for Pulmonary Fibrosis (APF) want to hear from you

Are you passionate about transforming patient care through innovation and research activity?

by Fraser Henderson | Jan 22, 2024 | Involvement

The Innovation, Research, Life Sciences & Strategy (IRLSS) group at NHS England are expanding their Strategic Co-production group (SCG) and recruiting Patient and Public Voice Partners to join the group. Full information for this role can be found here and an...
Do you or someone you love have lung scarring? Action for Pulmonary Fibrosis (APF) want to hear from you

Co-creating resources to support family and friends of sexual violence and abuse survivors

by Fraser Henderson | Jan 22, 2024 | Involvement

Sarah West, a postgraduate researcher at Coventry University, is running a series of workshops with survivors who have been supported by people in their personal networks, such as their friends, partners or family members (informal support), and people who have...
Do you or someone you love have lung scarring? Action for Pulmonary Fibrosis (APF) want to hear from you

Research study exploring the relationship between childhood trauma and voice-hearing

by Fraser Henderson | Jan 15, 2024 | Involvement

Beth and Molly are two doctoral researchers at Royal Holloway University of London. They are inviting you to take part in a study exploring the relationship between childhood trauma and voice-related distress in adults that hear voices. If you decide to take part,...
Do you or someone you love have lung scarring? Action for Pulmonary Fibrosis (APF) want to hear from you

Looking for people to take part in a research study investigating childhood trauma

by Fraser Henderson | Jan 15, 2024 | Involvement

A Trainee Clinical Psychologist, Melanie Taylor, is carrying out a doctorate research study via Lancaster University. This study is investigating how experiencing childhood trauma may influence one’s understanding of themselves in adulthood. Childhood trauma is more...
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