Recruiting participants who use social media about social care

by Fraser Henderson | Jun 10, 2024 | Involvement

This is a scoping project funded by the Care Policy and Evaluation Centre at the London School of Economics and Political Science. They are trying to gain initial information about social media for social care including an understanding of how people use social media...

NIHR Patient Engagement in Clinical Development Service – Document Review – Testicular cancer

by Fraser Henderson | Jun 6, 2024 | Involvement

The National Institute for Health and Care Research is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into testicular cancer, by...

Research opportunity for people in the UK to share their experiences of care in advanced liver disease

by Fraser Henderson | Jun 6, 2024 | Involvement

Cathy Beresford is a nurse and PhD student at Bournemouth University working with people affected by advanced liver disease to explore their experiences of care. Carers of individuals with advanced liver disease can also take part in the study.   To take part in...

NIHR Patient Engagement in Clinical Development Service – Document Review in Thalassaemia

by Fraser Henderson | Jun 6, 2024 | Involvement

The National Institute for Health and Care Research is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into thalassaemia, by...

Study on Wellbeing and Burnout Among Disability Activists

by Fraser Henderson | May 31, 2024 | Involvement

Lyla Adwan-Kamara is doing a study on wellbeing and burnout among disability activists. This study is funded by London School of Economics as part of ‘Atlantic Fellows for Social and Economic Equity’.   Lyla used to run a Disabled People’s Organisation and...

Action for Pulmonary Fibrosis (APF) want to hear from you – lung scarring and health inequalities

by Fraser Henderson | May 31, 2024 | Involvement

Pulmonary fibrosis is a type of lung scarring, where the lungs become stiffer and smaller, eventually leading to lower oxygen levels in the blood. This can be caused by a range of other conditions, including asbestosis, rheumatoid arthritis, and scleroderma. However,...