The National Institute for Health and Care Research (NIHR) is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into Haemophilia, by participating in an online document review. They want to hear your feedback to ensure that this, and future research, is as accessible as possible for everyone by designing it for patients, with patients.
The NIHR is looking for:
- Up to 8 adult individuals (aged over 18), living in the UK
- People with lived experience, as a patient or parent/carer, of Haemophilia A or B
- You will need to be able to access and use a word processing programme, such as Microsoft Word, to read the documentation and fill out a feedback form/forms
- You will need to be comfortable with reviewing the documentation and sending back comments online
Expected commitment from participants:
This is an online review to comment on the content and design of patient-facing documents for a particular research study. The NIHR want to ensure that the documents are informative, accessible, engaging and fit for purpose, and that the language used is appropriate for potential participants and carers. Participants will have 10 days to review the documents and return their feedback.
Closing date to apply: Sunday, 30th November 2025
Documents will be sent via email. The NIHR will endeavour to make these documents as accessible as possible, depending on participant requirements.
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