The National Institute for Health and Care Research is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into Hereditary Angioedema, by participating in an online document review. They want to hear your feedback to ensure that this and future research is as accessible as possible for everyone, by designing it for patients, with patients.
The NIHR is looking for:
- Up to 8 adult individuals (aged over 18), living in the UK.
- People who lived experience, as a patient or parent/carer of Hereditary Angioedema.
- You will need to be able to access and use a word processing programme such as Microsoft Word to read the documents and fill out a feedback form.
- You will need to be comfortable with reviewing the documentation and sending back comments online.
Expected commitment from participants:
- This is an online document review to comment upon the design of an observational research study and how the information introducing the research is presented to patients.
- The NIHR want to ensure that the documents are informative, accessible, engaging and fit for purpose, and that the language used is appropriate for potential participants and caregivers.
- Participants will have 10 days to review the documents and return their feedback.
Closing date to apply: Monday 4th August 2025
Documents will be sent via email. The NIHR PECD service will endeavour to make these documents as accessible as possible, depending on participant requirements.
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